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Autism In The Family
Autism In The Family
Some children can say how they’re feeling,
when they’re worried, anxious or scared,
but others cannot find the words,
leaving them frustrated and despaired.
These children are fighting battles,
in their minds each and every day,
battles some people don’t understand,
and so choose to stay away.
Our son is battling with Autism,
the days can be challenging and long,
while we love him unconditionally,
it’s sometimes hard to stay strong.
All his anger and frustrations,
grow more violent through the years,
as he struggles with a younger mind,
than those of all his peers.
We feel the brunt of those frustrations,
we can ache from limb to limb,
but no matter how hard life gets for us,
we know it’s so much harder for him.
For every child deserves to feel safe,
but some of them feel scared,
not understanding the world they see,
and being constantly compared.
His sleep is filled with nightmares,
when those at school are unkind,
he wakes confused and angry,
unable to free them from his mind.
Still every day we begin anew,
holding hope deep in our hearts,
that today will turn out differently,
and his future can finally start.
Those days turn into weeks and months,
with progress painfully slow,
but no matter how small the step is,
we celebrate with hearts aglow.
As we know how hard it was for him,
just to make that step at all,
not easy like some others find,
but at a slow and anxious crawl.
As the parents of an Autistic child,
we have much worry and stress,
we need our family and friends support,
but sadly feel isolation and loneliness.
Though his unexpected smile or hug,
will more than make our day,
it’s those extra special moments,
that help ease the pain away.
His heart is full of goodness,
his smile brings us so much joy,
we only wish the world could see,
the way we see our amazing boy.
As some are quick to blame the parents,
and think that Autism doesn’t exist,
saying it’s all down to discipline,
that’s lacking or being missed.
To all those people both near and far,
I want to simply say,
before you judge our family,
please, come and live our day.
We did not make this happen,
in all honesty, who would?
But this is our life and reality,
and it’s time it was understood.
It hurts to see him suffering,
knowing we cannot take it away,
that it will never be grown out of,
that Autism is here to stay.
All our hopes and dreams for him,
for the life we thought he’d lead,
are now cloudy and uncertain,
but together we will succeed.
Still we worry about his future,
praying that our lives are long,
Who will love and look after him?
What will happen when we’re gone?
These thoughts stay with us every day,
and haunt our minds at night,
when the darkness make fears stronger,
and the worries hard to fight.
But we must not hide ourselves away,
for his sisters sake and ours,
but as sensory overload gets too much,
his behaviour quickly sours.
So when you see a shouting child,
and look on with a scowl,
remember, they may not be spoilt or naughty,
but feeling anxious and overwhelmed.
You cannot see inside their minds,
or through their frantic eyes,
you do not know what panicked them,
you only hear their cries.
So please don’t stand and stare or point,
at families struggling on each day,
some acceptance and understanding,
will go a long, long way.
Created and written by Louise Bond
